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Over the last six years literally hundreds of patients
and supporters have helped FSR raise awareness of sarcoidosis and funds
to support much-needed research.
We are proud to acknowledge a few of these individuals
through the special rotating banner on our Web site. Each of them has
contributed in some significant way to our success and we thank them. We
call them our Friends, but they could easily be called Sarcoidosis
Superstars.
Spring-Summer 2007
Ken
Felts
Ken Felts life ended tragically at the age of 48 due to undiagnosed
cardiac sarcoidosis. In their grief his family chose to honor him
and to celebrate his life while helping to raise awareness about this
disease. In August of 2005 they hosted the It's 5 O'Clock
Somewhere Golf Tournament with proceeds donated to FSR. With the
money raised, FSR was able to develop a brochure on cardiac sarcoidosis
to educate patients and their health care professionals.
Order a free copy.
Kirk Mease
Mr. Mease is a neurosarcoidosis patient and Head Golf Professional at
Wellshire Golf Club, who is active in the Denver Sarcoidosis Awareness
Support Group. In September 2006 and 2007, Mr. Mease organized 'Golf in the
Darc for Sarc' a glow ball tournament which raised more than $10,000 to
support development of a new brochure on neurosarcoidosis which will be
available from FSR in the Fall of 2007.
Karen Russell
A Harvard educated attorney and a TV legal analyst in Seattle, who
appears on CNN, MSNBC and CourtTV to debate national issues, both Ms.
Russell and her father, famed NBA player Bill Russell, have sarcoidosis.
In addition to recording a
Public Service
Announcement for the Foundation, she served as Co-Emcee for the
KISS Chicago 2007 fundraising event held in Chicago on February 3, 2007.
Pauline
Vasiliaskas
In November 2004 at the young age of 42, Pauline's life was taken
suddenly due to undiagnosed cardiac sarcoidosis. This wonderful lady
gave everything of herself to friends, family and her local community
through countless volunteer hours. She left behind her pride and joy in
two beautiful daughters who now at the ages of 13 and 16 have found the
courage to continue on with their lives. Her warmth, love,
laughter and strength are missed by those who loved her. In 2007,
Esther Lewis and Grady Harrison organized a tribute which raised more
than $20,000 to benefit the Foundation.
Kim Wall
After losing her beloved husband and fellow actor Joseph Scornaienchi to
undiagnosed cardiac sarcoidosis, Ms. Wall was inspired to make a
difference. Serving as the guest monologist for The Doug Dank
Project in November 2006, she arranged to have 100% of proceeds from this
unique, long-form improvisation show inspired by her personal stories
donated to the Foundation.
If you would like to nominate someone for recognition on the FSR Web
site through our Friends program, please
contact the Foundation.
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