 The
Foundation for Sarcoidosis Research (FSR), the FSR International
Coalition to Stop Sarcoidosis, and the FSR Support Group Advisory
Council invite you to partner with us to declare April, 2011 Sarcoidosis
Awareness Month to focus attention on sarcoidosis and the need for
research and to raise the visibility of your work to support individuals
diagnosed with the disease.Join
Activities Planned in Your Area this April!
Contact us to add your event to our calendar. For information
about regularly scheduled sarcoidosis support group meetings in your
area, visit www.sarcoidlife.org.
View a list of locations where
Awareness Month Proclamations were issued.
|
Date |
Location |
Event |
|
April 9 |
Alabama |
Greater North Alabama
Sarcoidosis Support Group in Huntsville hosts the Search for
a Cure Rummage Sale & Silent Auction at the Huntsville
Jaycee Building. Look for the billboard advertising the event. |
|
April 9 |
Michigan |
The Beaumont Sarcoidosis
Support Group in Detroit will host a special Support Group
meeting featuring Dr. Joel Seidman, pulmonologist at
Beaumont Hospital and a patient panel. |
|
April 9 |
Illinois |
The Chicago Southside
Sarcoidosis Support Group Meeting with Jan Lugibihl, FSR
Education Manager as speaker. For more information,
Click Here. |
|
April 9 |
Virginia |
The Tri-Cities Sarcoidosis
Support Group will distribute flyers in Chesapeake,
Portsmouth and Suffolk today, April 13 and April 18 |
|
April 9 |
Tennessee |
In Memphis, TN, a group is
holding an educational meeting at the Public Library from
3:00 to 5:00PM featuring a section a presentation by Dr. Bell
and viewing of a section of the FSR 2010 Patient Conference DVD. |
|
April 10 |
Pennsylvania |
The FUNtabulous Philly
Pursuit fundraiser to benefit FSR with Dr. Milton Rossman
from the University of Pennsylvania and FSR Board Member as
guest speaker has been organized as their “Passion Project†by
four students in the Strategic Leadership Class at St. Joseph’s
University. Two of the students have family members who have
been affected by sarcoidosis. To register,
Click Here. |
|
April 10 |
Pennsylvania |
A conference titled
Autoimmune Disease: "What a Pain" will be held
from 12:00 to 4:30 p.m. at the Autoimmune Resource Center, 615
Jefferson Street, Scranton. Registration begins at 11:00 a.m. |
March 20-
April 20 |
Alabama |
Sarcoidosis Support Group of
North East Alabama On-line Tupperware sale to benefit FSR.
To participate,
Click Here. |
|
April 13 |
Nationwide |
Wear Purple and White Day
- Purple has long been claimed by sarcoidosis patients as
their color, so we invite you to proudly wear purple and
white to raise awareness. |
April 13
1:30 CT |
Nationwide |
FSR Educational Webinar
- FREE
Participation is free in
this online event hosted by FSR featuring Laura Koth, MD (UCSF).
Contact Us to Register. |
|
April 13 |
Michigan |
The Wright Sarcoidosis
Support Group of Pontiac is hosting a creative photo contest.
Contestants will take a photo of themselves dressed in purple
and white and vie for individual and group prizes for the most
creative submissions. |
|
April 14 |
Illinois |
Members of Illinois Support
Groups will visit their legislators at the state capitol as a
part of Illinois State Lung Health Education Day
organized by Respiratory Health Association of Metropolitan
Chicago. For more information,
Click Here. |
|
April 16 |
Illinois |
The Let's Breathe
Sarcoidosis Support Group of Lake County meeting with Jan
Lugibihl, FSR Education Manager as speaker. |
|
April 20 |
Michigan |
The Wright Sarcoidosis
Support Group of Pontiac will hold its 2nd Annual Sarcoidosis
Awareness Event at the Pontiac Public Library from 7:00-8:00
p.m. The candelight ceremony will feature Dr. Robert Phillips. |
|
April 20 |
West Virginia |
The Sarcoidosis Foundation of
West Virginia will host an informational booth at West
Virginia State University. |
|
April 21 |
California |
REACHâ€â€ÂSarcoidosis Network
Foundation, Artesia, CA will hold a special support group
meeting. For more information about this, contact
Ruth Jacobs. |
|
April 23 |
Florida |
Janine’s Sarcoidosis Outreach
Foundation (JSOF) in Tampa, FL will host a Sarcoidosis
Awareness Rally/Walk for A Cure at the Hunt Center, Al Lopez
Park with special guest speakerJe’Niece McCullough, daughter of
the late Comedian/Actor Bernie Mac, and Vice President of the
Bernie Mac Foundation for Sarcoidosis. For more information,
Click Here. |
|
April 23 |
Indiana |
The Central Indiana
Sarcoidosis Support Group will host an Awareness Forum
featuring Gary Martin, author of One Step Away; Dr. Karen
Wolf; and a patient
panel from 3:00 to 5:00 PM at the Washington Park North Family
Center. For more information, go to
www.indysarcoid.org
|
|
April 29 |
Louisiana |
The Sarcoidosis Awareness
Support Group of Greater Baton Rouge will hold "Stepping Out
Against Sarcoidosis", a five hour fundraising event
including an educational segment, dinner, and a night of
dancing. |
|
April 29 |
West Virginia |
The Sarcoidosis Foundation of
West Virginia will host a seminar in Charleston. |
|
April 29 |
Virginia |
The Tri-Cities Sarcoidosis
Support Group will collect food donations during the
month and present them on this day to the Foodbank of
Southeastern Virginia. |
|
April 30 |
Louisiana |
The Sarcoidosis Awareness
Support Group of Greater Baton Rouge will hold a health fair. |
|
April 30 |
Tennessee |
The West TN Sarcoidosis
Support Group will hold a Walk-a-Thon. |
|
April 30 |
Texas |
Janine’s Sarcoidosis Outreach
Foundation & Support Group in Houston will host a Gospel
Concert. For more information,
Click Here. |
Additional Activities
Throughout the month, groups and individuals will participate in
other educational and awareness activities, including:
|
Alabama |
Two Alabama
groups have put up billboards with awareness raising messages. |
|
Alabama |
The Greater North
Alabama group is planning presentations at local community
organizations and has organized the "Purple Ribbon Brigade" to
make and hand out ribbons wherever possible to raise awareness. |
|
California |
REACHâ€â€ÂSarcoidosis
Network Foundation in California will pass out awareness raising
information in local malls, hospitals and libraries. |
|
California |
A Song for Life
Foundation, based in Burbank, California, will hold two
teleconferences and display its Faces of Sarcoidosis Awareness
collage banner. For more information,
Click Here. |
|
Louisiana,
Texas and Tennessee |
Media interviews
with patients and Support Group Leaders. |
|
West Virginia |
The
Sarcoidosis Foundation of WV, Inc. in Charleston, WV will hand
out purple ribbons and educational materials along with
registration forms for its September Walk/Run and distribute
sarcoidosis information packets to legislators. |
Proclamations Declare:
APRIL SARCOIDOSIS AWARENESS MONTH
Groups and individuals around the country have asked their elected
officials to declare April Sarcoidosis Awareness Month. If you would
like to get a head start on next year and approach your city, county
and/or state about declaring April, 2012 Sarcoidosis Awareness Month,
please refer to the Tips For Obtaining A Government Proclamation section
of the Sarcoidosis Awareness Month Tool Kit developed by the FSR
Sarcoidosis Support Group Advisory Council.
To-date, the following locations have
stated their intention to issue a proclamation:
|
Location |
Status |
| State of Alabama |
|
| City of Baton
Rouge, Louisiana |
|
| State of
California |
|
| City of
Charleston, West Virginia |
|
| City of Tampa,
Florida |
|
| State of Indiana |
|
| City of
Indianapolis |
|
| State of
Louisiana |
|
| State of Michigan |
|
| State of
Pennsylvania |
(for May, 2011) |
| Carroll County,
TN |
|
| State of
Tennessee |
|
| State of Texas |
|
| State of West
Virginia |
|
|
